Virtual Stepping Out to Cure Scleroderma! Saturday, June 26, 2021

Up to the Minute

From The Scleroderma Foundation Tri-State Chapter:

Binghamton, NY— The Scleroderma Foundation Tri-State Chapter will hold its Virtual Stepping Out
to Cure Scleroderma event on Saturday, June 26, 2021 on Facebook & YouTube.
Stepping Out is a family-friendly event that brings together people with scleroderma, their families and friends, and dedicated volunteers to honor people with scleroderma and lift the spirits of those who support them. All funds raised will help provide education and support services to the scleroderma community and help fund research to discover the cause, understand the mechanism, and overcome scleroderma forever.

The virtual Stepping Out to Cure Scleroderma event includes speakers (participants and doctors), silent auction, and special performances by Moody McCarthy and Monica Johnson in a virtual atmosphere via Facebook Live and YouTube. Participants can register to walk or sponsor a walker online (www.SteppingOutWalk.org).

Registration is also available via mail. The walk registration fee is $30 for participants 16 years and older and $10 for children ages 5 to 15. Children under five are free. Registration forms and donations may be mailed to the Tri-State office (59 Front Street, Binghamton, New York 13905).
The Virtual Stepping Out to Cure Scleroderma event is combining our 11 virtual walks throughout
the Tri-State area of New York, New Jersey, and Connecticut. The walks are a highlight of June
Scleroderma Awareness Month activities and they raise crucial funding to continue the Scleroderma
Foundation mission. For more information, including a list of our walks throughout the Tri-State region, visit www.steppingoutwalk.org.

Stepping Out to Cure Scleroderma is made possible in part by our outstanding corporate sponsors:
Janssen and Boehringer Ingelheim.

For more information on scleroderma and the Scleroderma Foundation Tri-State Chapter, call (800)
867- 0885 or visit www.SclerodermaTriState.org. You can also find us on Facebook, Instagram,
Twitter and YouTube.

Editor’s note:
Prior to the walk, interviews with local patients and event coordinators can be arranged. Please call
the office at (607) 723-2239 or toll-free at (800) 867-0885.

About Scleroderma

Scleroderma [skler-o-derma] is a chronic, often progressive, autoimmune disease in which the
immune system attacks one’s body.
Scleroderma comes from the Greek word “sclero” meaning “hard”, and the Latin word “derma”
meaning “skin.” One of the earliest and most easily visible manifestations can be a thickening and
tightening (or “hardening”) of the skin. In some cases, it causes serious damage to internal organs
including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of
these organs and organ systems progress, they work less effectively, and can lead to organ failure
and death.

Some medications and treatments can help with certain symptoms, but there is no cure for
scleroderma. The disease affects about 300,000 people across the U.S. There are an estimated
30,000 cases of scleroderma in the Tri-State Chapter’s New York, New Jersey and Connecticut
service area.

About the Scleroderma Foundation Tri-State Chapter

The Scleroderma Foundation Tri-State Chapter is a 501(c)(3) non-profit organization serving people
living with scleroderma in New York, northern New Jersey and Connecticut. The chapter has a threefold mission to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.

The organization helps scleroderma patients and their families cope with the disease through support groups, educational forums, physician referrals and educational information such as articles, books and DVDs, available through our lending library and a growing number of videos online at www.sclerodermavideo.com.

More about the work and mission of the Tri-State Chapter can be found at
www.SclerodermaTriState.org. Keep up-to-date on events and other happenings on Facebook
(www.facebook.com/SclerodermaTS) as well as Twitter (@sclerodermaTS) and Instagram
(sclerodermaTS).

About the Scleroderma Foundation

The Scleroderma Foundation is the national organization for people with scleroderma, their families
and friends. Headquartered in the metro Boston area in Danvers, Mass., the Foundation has a
network of 21 chapters and 160 support groups committed to carrying out the three-fold mission of
support, education and research. The Scleroderma Foundation is one of the largest nonprofit funders of peer-reviewed medical research, in 2018 making available $1.2 million in new research grants to find the cause, better treatments and a cure for scleroderma.
For more information about the Scleroderma Foundation, visit www.scleroderma.org or call (800) 722-HOPE (4673). You also can find the Foundation on Facebook (www.facebook.com/sclerodermaUS)
and Twitter (@scleroderma).

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